LetterEthics

Comment on “Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right”

Science Translational Medicine  16 Feb 2011:
Vol. 3, Issue 70, pp. 70le1
DOI: 10.1126/scitranslmed.3001516

You are currently viewing the abstract.

View Full Text

Via your Institution

Log in through your institution

Log in through your institution


Abstract

Bookman et al. write to correct the impression given in the Commentary by Kohane and Taylor that the recommendations of the National Heart, Lung, and Blood Institute (NHLBI) Working Group “Reporting Genetic Results in Research Studies” included advice to return genetic information to research subjects only in cases where there is a proven or preventative intervention for the identified disorder. In fact, the report does recommend that genetic information be returned to subjects when there is an intervention available, but it does not recommend against giving this kind of information to subjects if there is no available intervention.

Footnotes

  • Citation: E. B. Bookman, A. A. Langehorne, J. H. Eckfeldt, K. C. Glass, G. P. Jarvik, M. Klag, G. Koski, A. Motulsky, B. Wilfond, T. A. Manolio, R. R. Fabsitz, R. V. Luepker, Comment on "Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right." Sci. Transl. Med. 3, 70le1 (2011).

View Full Text